Real World Health Care Blog

Tag Archives: holidays

Be a HealthWell Hero for Patients This Holiday Season

“HealthWell literally saved my life.”

If we told you that the perfect holiday gift could help save a life, you probably wouldn’t believe us. Think again. You’ll make a sick person’s wish come true when you give the gift of health to patients in urgent need of financial assistance by donating to the HealthWell Foundation.

100% of contributions to HealthWell will go directly to help patients access critical, often life-saving services. Your generous gift — whether it’s $10, $25, $50 or more — could make all the difference for people who are struggling to get better. Just ask Sharon, from Detroit, MI.

Feeling drained and not knowing where to turn, Sharon wasn’t sure how she was going to afford the high cost of her lupus medications. Then she discovered HealthWell, which gave her the financial help she desperately needed, just in time. Now Sharon can continue working and her family no longer has to pinch pennies to help her pay for treatments:

“What people sometimes fail to realize is that people with chronic conditions are dependent on prescribed therapies,” Sharon said. “The absence of these treatments means that we can potentially miss out on an enhanced quality of life. That’s a terrible notion to fathom because who doesn’t want to live their best life possible?”

We couldn’t agree more. At HealthWell, we believe no patient – adult or child – should ever go without the treatments they need because they can’t afford it.

When you donate to us for the holidays, you’ll be a hero for patients like Brad from Myrtle Beach, NC.

“Thanks to grants from HealthWell, I can now get the medication I need to keep my disease at bay!”

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Financial assistance from HealthWell enables Brad to get the medication he needs to manage Rheumatoid Arthritis.

The generosity of supporters made it possible for him to afford the care that empowers him to control his severe/aggressive Rheumatoid Arthritis. Without a grant from HealthWell, he says he would live “a life of degrading joints, pain and disfigurement.”

Amy from Whitesburg, GA, was diagnosed in May 2010 with stage IV non-Hodgkin’s lymphoma, a blood cancer. Because supporters like you were there for her, she’s now living to celebrate her children’s birthdays and watch them grow up.would live “a life of degrading joints, pain and disfigurement.”

“After each of my eight chemo treatments, I received a treatment to boost my white blood cell count,” she said. “Your donation helped pay for those very expensive treatments, and they helped! I NEVER got sick during my treatment phase. I have now been in remission for 14 months!”

Amy, Brad, and Sharon are not alone. Our work is not done.

Folks all over the country – mothers, fathers, children, friends, neighbors and loved ones – are getting sick and watching the bills pile up, with no end in sight. The need is great and patients are counting on you to step up so we can continue to be a lifeline in these tough financial times.

Join us in saying Happy Holidays to patients and families by giving them some relief so they can start the New Year off right.

Categories: Cost-Savings

Get Your Flu Shot Now to Stay Healthier Later

So you think you’re too busy to get your flu shot? It’s easy to put off, but taking the time to do it sooner rather than later could prevent you from getting sick while helping to protect those you care about – during the holidays and beyond. That’s why the U.S. Department of Health and Human Services (HHS), the Centers for Disease Control and Prevention (CDC), state and local health departments as well as other health agencies are raising visibility around National Influenza Vaccination Week (NIVW), from Dec. 8-14.

Paul DeMiglio

Paul DeMiglio

With the flu season beginning in the fall and not peaking until January-February, it’s certainly not too late to get your influenza shot. In fact, the CDC’s Advisory Committee on Immunization Practices recommends that everyone 6 months of age or older receive it, including:

  • Children
  • Seniors 65 and older
  • Pregnant women
  • American Indians and Alaska Natives
  • Those with underlying health conditions like asthma
  • Those living with conditions including chronic lung disease, heart disease, HIV/AIDS, cancer and diabetes

Although the effectiveness of flu vaccination varies each year, the CDC reports that recent studies demonstrate the evidence-based public health benefits. The Mayo Clinic agrees, calling flu shots your best defense against the flu, enabling “your body to develop the antibodies necessary to ward off influenza viruses.”

“The single best way to protect against the flu is to get vaccinated each year,” said CDC’s Anne Schuchat, M.D., Director, National Center for Immunization and Respiratory Diseases. “Today, flu vaccines are available in more convenient locations than ever. The few minutes it takes to get a flu vaccine can save you from experiencing several unproductive days due to influenza. The most common side effects are mild and short-lasting, especially when compared to symptoms of influenza infection.  Flu vaccine cannot cause flu illness.”

Despite evidence that the influenza vaccine is an effective tool, some still fear that getting their shot might put them at risk for experiencing severe side effects. No more than one or two cases per million people vaccinated acquire Guillain-Barré syndrome, an outcome much lower than the risk of developing severe complications from influenza. From 1976-2006, in fact, estimates show that far more people died from flu-associated deaths in the U.S. (3,000-49,000) than from negative reactions to the vaccines that protect against influenza.

To build awareness and support of NIVW and encourage people to get their shots, the CDC is making a rich variety of online tools and resources available to a wide spectrum of patients, educators and providers, such as:

Partnering with Reckitt Benckiser, Inc., the makers of LYSOL® Brand Products, the CDC is also spotlighting the Ounce of Prevention Campaign, which seeks to empower consumers and professionals with practical tips and information around effective hand hygiene and cleaning habits to prevent infectious diseases like the flu.

Click here to see if the vaccine is available in your area. To find a nearby location to get the vaccine, check out HHS’s “Flu Vaccine Finder” on Flu.gov, enter your ZIP code and share the widget to let your family members, colleagues and friends know where they can go too. HHS also provides a series of informative YouTube videos that cover prevention strategies, share tips for identifying symptoms and provide recommended treatment practices.

You can also make a powerful statement by taking the pledge to get vaccinated for the 2013-14 season, commit to taking a friend with you and in the process spread the word by clicking here. To get the latest updates on flu vaccination efforts, follow the CDC on Twitter (@CDCFlu and @CDCgov) and “like” them on Facebook.

Now tell us if you’ve gotten your flu shot. Where did you go? How long did it take? What ways could providers and health care stakeholders more effectively remind patients to get vaccinated?

Make Life a Little Easier for Sick Children This #GivingTuesday

Cyndi from Midland, TX didn’t know how she was going to pay for the asthma medication her son Ethan desperately needed. Feeling like nothing was going right and not knowing where to turn, she was on the verge of losing hope. Then something dramatic happened that would change everything. Cyndi discovered the HealthWell Foundation:

Cyndi didn't know how she was going to pay for her son Ethan's (right) asthma medication until she found the HealthWell Foundation.

Cyndi didn’t know how she was going to afford asthma medication for her son Ethan (right) until she applied to the HealthWell Foundation for financial assistance.

Our son was born very sick. He spent 5 weeks in the NICU, 2 of which were on a ventilator. When we finally brought him home, we knew I had to stay home with him. If we put him in daycare, we knew he would get sick and that would be hard on his lungs. With me not working, it put a huge cloud over our finances. We quickly found out that his asthma medication was not cheap, even with insurance. I also found out that there isn’t a lot of help for people who have insurance and a decent job. I spent hours and hours on the Internet and the phone trying to find some help. One day I found HealthWell. We applied thinking we would be denied. The day I got the acceptance letter in the mail, I sat on the kitchen floor and cried. I felt a sense of relief. Finally, something was going right. We cannot be more grateful for all the help HealthWell has given us. 

When you give to HealthWell’s Pediatric Assistance Fund for #GivingTuesday, you will make a difference for children who have been diagnosed with a chronic or life-altering condition, just in time for the holidays. Every penny of your donation will help us provide financial assistance to patients so they can afford the rising cost of care:

  • To date, HealthWell has awarded more than 274,000 grants to insured adults and children across all of our funds to help them afford treatments.
  • In just two months, we awarded grants of up to $5,000 to more than 20 families.

No family should ever have to wonder whether they can afford to save their child’s life. By giving to the Pediatric Assistance Fund, you will help us remain a lifeline for families so they can afford life-saving treatment for their sick children.

Your gift will help ensure that families with children who have chronic conditions – including leukemia, cystic fibrosis, or juvenile diabetes – are not forced to choose between paying the bills and affording quality care. Here’s a breakdown of how donations, large and small, will have a tangible impact:

  • $10 covers the cost of diabetes test strips for Michael for one month.
  • $45 supports Yessenia’s pituitary hormone treatment for 1 week.
  • $75 covers Quinnlian’s lesion treatment for immunosuppressive disease for one month.

Start the holidays off right by donating to HealthWell for #GivingTuesday and make life a little easier for more families like Ethan’s. Your gift will make the season brighter for children and families struggling to afford the medications or treatments they need.

Categories: Cost-Savings

Give Patients the Gift of Hope and Health by Supporting HealthWell for #GivingTuesday

We are proud to announce that the HealthWell Foundation – an independent 501(c)(3) charity that provides financial assistance to insured patients living with chronic and life-altering illnesses – is joining the #GivingTuesday campaign, which launches today. 100 percent of your donation to HealthWell goes directly to grants and services that will benefit patients in need across the country. This week we are sharing some powerful real-world examples of how your gift to HealthWell will help transform lives.

Lynn Harcharik

Lynn, who received financial assistance from HealthWell for cancer treatments.

As one of our country’s most trusted independent charities, we believe that no patient, including those living with cancer, should go without health care because they can’t afford it. By donating to HealthWell for #GivingTuesday, you’ll join us in making that commitment a reality that will change lives for the better, one patient at a time – just like Lynn.

It was ovarian cancer spreading to the colon. My husband called many places, no cancer society would help! One society asked what type of cancer it was, and replied: there are no funds for ovarian cancer – we cannot help. Another organization had already used their funds. It was very discouraging, but my oncologist’s secretary told us about the HealthWell Foundation. After calling and talking to your group, the answer was YES, you would help. (Thanks!) In October of 2008, reversal surgery was done with the ileostomy. And yes, the cancer came back, or maybe was not completely gone from before, but-more chemo! Thank you for being there in my time of need. My prayers are with your group and your work. Thanks!

– Lynn (Streator, IL)

We want to make a difference for even more patients like Lynn so they can access critical medical treatments and get better. But that can only happen with your support.

That’s why, for this year’s #GivingTuesday, we’re urging Real World Health Care (RWHC) Blog readers to donate to the HealthWell Foundation’s Emergency Cancer Relief Fund (ECRF). Your generous holiday gift will help ensure that patients living with cancer are not forced to choose between paying the rent or buying food and affording life-saving care.

So what, specifically, will your tax-deductible #GivingTuesday donation do? Giving to ECRF will bring us closer to meeting our $100,000 goal by the end of the year so the fund can open in January. We are almost halfway there with more than $46,000 raised so far. Every dollar counts, and with just a little more help, we will hit our goal so that more cancer patients can start 2014 off right.

To help more families and patients afford the urgent medical treatments they desperately need, we need you to support #GivingTuesday starting today. Please contribute as generously as you possibly can.

Thank you for giving the gift of health this holiday season.

Categories: Cost-Savings

Toys “R” Us Guide Makes the Season Brighter for Children with Special Needs

As we enter the holiday season, shoppers have the opportunity to turn to the Toy Guide for Differently-Abled Kids – an annual publication put out by Toys “R” Us. This valuable resource is designed to give parents, relatives, friends and professionals the information they need to make more educated choices about purchasing gifts for children with unique talents and abilities.

Paul DeMiglio

Paul DeMiglio

Gabby Douglas, a gold-medalist gymnast in the 2012 Olympics, is featured on this year’s edition and says the guide is “filled with everyday playthings, specially chosen to help kids build key skills, like creativity, language and critical thinking, reach new milestones and have fun at the same time.” Douglas is the most recent in a long line of celebrities and philanthropists who have appeared on the guide’s front cover, including Whoopi Goldberg, Eva Longoria and Maria Shriver.

“We understand the joy of watching a child experience victories through the magic of play, whether they’re learning to catch and throw a ball, role-playing through dress-up or learning to count using an app on their very first tablet,” said Kerry Smith, Toys “R” Us spokesperson. “For nearly two decades, we have been providing parents and caregivers with product recommendations for children with special needs through the trusted Toys“R”Us Toy Guide for Differently-Abled Kids. This annual resource is filled with everyday playthings selected as appropriate in helping kids build critical skills and reach new milestones – all while having fun at the same time.”

The guide provides shoppers with specific questions to help ensure that their selections match the developmental needs of the children for whom they’re shopping. Customers are encouraged to consider whether the toy fosters creativity and self-expression, if it provides a challenge without being frustrating, if it allows for adaptability to the child’s needs, whether the toy reflects the child’s interests and age, and much more.

The guide also shares numerous safety suggestions for parents and guardians so they can more effectively prevent accidental injuries and help children understand how to keep out of harm’s way during playtime:

  • Never leave a child unsupervised
  • Read labels for ability
  • Survey the play area
  • Establish concrete rules
  • Use visual warnings
  • Review and repeat
  • Prepare for off-site play dates
  • Click here for the full list

The toys were evaluated and tested by the National Lekotek Center, a non-profit that examines toys’ therapeutic qualities in aiding the development of children with physical, cognitive or developmental disabilities. A leader in the field with almost 30 years’ experience, Lekotek studies and reviews hundreds of toys, selecting those that benefit children. This information is then sent to Toys “R” Us for placement in the guide. Toys are categorized according to various child development needs such as visual, auditory, social skills and motor skills, among others.

If you would like to know more about the guide and the company’s philanthropic events, visit the new Toy Channel on YouTube, which includes an “‘R’ News” section that features information about charitable contributions. The guide can be found in any Toys “R” Us store or can be viewed online here.

Have you or someone you know ever used the Toy Guide for Differently-Abled Kids? Did it address your questions and make toy shopping for children with special needs easier? What challenges have you faced when purchasing toys for children with special needs, and what resources have you found helpful when making decisions?

Categories: Access to Care

Help A Sick Child this Holiday Season

No family should ever have to wonder whether they can afford to save their child’s life, but that very question haunts families all over the country, every day. Through the HealthWell Pediatric Assistance Fund,® however, we are working to change that — because no adult or child should go without health care because they can’t afford it.

In just two months, the HealthWell Foundation awarded  grants of up to $5,000 to more than 20 families. These grants help children like Anna, who was born with a rare disorder affecting the brain known as Sturge-Weber Syndrome. A grant from Pediatric Assistance Fund eased the financial burden that Anna’s family faced after the radical surgery she underwent to help stop her seizures and stroke-like episodes. Now instead of having to choose between paying the bills and affording life-saving treatment, Anna’s family can focus on her recovery and watching her grow up.

Photo (left): Earlier this year, Anna had surgery for a rare brain disorder. Photo (right): Now she is back home, seizure free -- healing and growing.

Photo (left): Earlier this year, Anna had surgery for a rare brain disorder.
Photo (right): Now she is back home, seizure free — healing and growing.

We want to empower even more families just like Anna’s, so they can afford the treatments their children desperately need. That’s why, during this season of giving, we’re urging you to donate to the Pediatric Assistance Fund so we can help the next family, just in time for the holidays. 100 percent of your tax-deductible gift will go directly to patient grants and services to help children start or continue critical medical treatments.

In the following letter, Anna’s mom Mary from Delta, Pennsylvania, shares the challenges of affording care for their little girl and the big difference that HealthWell’s Pediatric Assistance Fund grant made in their lives:

Our daughter, Anna was born with a birthmark on her face and scalp. The doctors suspected there was more to the story. A CT scan of her head confirmed the diagnosis of Sturge-Weber Syndrome, a rare disorder affecting the brain. We spent the next few weeks as new parents trying to understand our beautiful little girl and the rare disease she had. When she was just 3 weeks old, she had her first set of seizures. It was terrifying to see her little body so out of control. She was admitted to the hospital and started on medication. The doctors were able to control the seizures, but never for too long.

Since that first seizure many years ago, we have celebrated many days without seizures and suffered through the days when they eventually returned. We changed medications, avoided activity that might over fatigue her, struggled through specialized diets and prayed for a cure. In January, Anna was scheduled to undergo a radical surgery to remove the diseased half of her brain. We knew this could offer her a future without seizures, but we also knew the incredible cost we faced.

With the help of the HealthWell Foundation, Anna had her surgery. She is back home, seizure free – healing and growing. Our family has been able to focus our attention on Anna’s recovery knowing the financial burden has been reduced.

We are so grateful for the financial support the HealthWell Foundation has offered to us. With their help, we are able to celebrate the wonderful little girl God has blessed us with and we look forward to her bright future.

Give to the Pediatric Assistance Fund today so we can make life a little easier for more families with children facing chronic or life-altering conditions.

Categories: Cost-Savings