Real World Health Care Blog

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Primary category: Amyotrophic Lateral Sclerosis

ALS and Precision Medicine: Learning from Patients Worldwide

The ALS Therapy Development Institute  (ALS TDI)  is a comprehensive drug discovery lab focused solely on amyotrophic lateral sclerosis (ALS). ALS is a progressive neurodegenerative disease that attacks the nerves responsible for voluntary movement. People with ALS can ultimately become completely paralyzed and the average life expectancy is usually between … (read full article)

Primary category: Amyotrophic Lateral Sclerosis

What is ALS?

May is ALS Awareness Month, and Real World Health Care wants to support the ALS patient community by bringing awareness to this disease. The following “primer” provides need-to-know information about Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. ALS Defined ALS is one of a group of conditions … (read full article)

Primary category: Movement Disorders

Growing Up with Huntington’s Disease

Next month marks Huntington’s Disease (HD) Awareness Month and Real World Health Care is dedicating this column to an important part of the Huntington’s patient community: children, teens and young adults. “Whether youth have a parent with Huntington’s or if they themselves have the early-onset form of the disease called … (read full article)

Primary category: General

Special Report: How do We Get People to Think Beyond Their Own Personal Risk?

Does the best science always inform the best behavior change? “In times of distress, human nature drives us toward each other. After 9-11, people came together. Physical contact with the people we cared about brought comfort. Maybe that’s why the public health messages about social distancing are not always getting … (read full article)

Categories: General
Primary category: Movement Disorders

Navigating Cognitive Changes in Parkinson’s Disease

Editor’s Note: The following has been excerpted, with permission, from Navigating Cognitive Changes in Parkinson’s Disease, published by The Michael J. Fox Foundation for Parkinson’s Research (MJFF). It was written by MJFF Vice President of Medical Communications and movement disorder specialist Rachel Dolhun, MD, in collaboration with Parkinson’s experts, the … (read full article)

Primary category: Movement Disorders

What Are Movement Disorders?

Throughout 2020, Real World Health Care will focus on Movement Disorders. Movement disorders are related to the nervous system. They include a variety of neurological conditions that cause increased, abnormal movements (voluntary or involuntary) or reduced, slow movements. Some movement disorders are inherited, while others are caused by infection, medication … (read full article)

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Special Report: Managing Your Mental Health During the COVID-19 Crisis

By now, most Americans are familiar with the physical symptoms of COVID-19, including cough, fever, and shortness of breath. However, coronavirus fears and COVID-19 diagnoses can cause more than just respiratory illness. They can lead to a range of mental health issues as well, including isolation, anxiety and stress. According … (read full article)

Categories: General
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Special Report: HealthWell Launches New Fund to Assist At-Risk or Quarantined Patients with COVID-19 Costs

Editor’s Note: Real World Health Care is pleased to share with our readers an announcement from our founding sponsor, the HealthWell Foundation, which has responded to the needs of its patient community with a new fund that promotes social distancing and provides assistance for needed services and products. We invite … (read full article)

Categories: General
Primary category: CAR-T Cell Therapy

Search & Destroy: Chimeric Antigen Receptor T-Cells (CAR-T)

Editor’s Note: The following article is reprinted, with permission from Biotech Primer. The original version appeared in the Biotech Primer WEEKLY. To subscribe to the Biotech Primer WEEKLY, click here. The first (and so far, only) chimeric antigen receptor T-cell (CAR-T) therapies—tisagenlecleucel and axicabtagene ciloleucel were approved in 2017, and … (read full article)

Primary category: Macular Degeneration

People with Macular Degeneration Live Full Lives with Help from Ophthalmologists

Does a diagnosis of age-related macular degeneration (AMD) mean you can’t live a rich, fulfilling life? Not necessarily, according to the experts. “The initial diagnosis can be scary,” said Purnima S. Patel, MD, associate professor of ophthalmology at Emory University who also works at the Atlanta VA Medical Center and … (read full article)