Real World Health Care Blog
Primary category: CAR-T Cell Therapy

Multiple Myeloma Research Foundation: CAR-T Cell Therapy Initiatives

Last year, the Multiple Myeloma Research Foundation (MMRF) launched a new, three-year strategic plan to help transform how multiple myeloma is treated and ultimately cured. One of the plan’s three strategic pillars focuses on immunotherapy, including chimeric antigen receptor T-cell (CAR-T) therapy. Real World Health Care spoke with the MMRF’s … (read full article)

Primary category: CAR-T Cell Therapy

CAR T-Cell Therapy Gave Me Back My Life

Editor’s Note: This week, Real World Health Care shares an inspirational story of a woman who was diagnosed with lymphoma and received treatment with CAR T-cell therapy. “CAR-T Cell Therapy Gave Me My Life Back” is reprinted with permission from the Association of Community Cancer Centers. Updated in April 2020, … (read full article)

Primary category: Movement Disorders

Tardive Dyskinesia: Shedding Light on A Serious Medication Side Effect

An estimated 44 million adults in the United States—close to 20 percent of the population—have a mental illness. While only a fraction of those adults use antipsychotic medicines to treat their illness, about one in ten who take certain forms of antipsychotics eventually develops a movement disorder called Tardive Dyskinesia … (read full article)

Primary category: CAR-T Cell Therapy

Does CAR-T Cell Therapy Belong in Community Clinics?

CAR T-cell therapy (CAR-T) has emerged as a highly innovative and promising option for patients with cancer. Until recently, the use of CAR-T has been restricted to small clinical trials, primarily with patients with advanced blood cancers. These trials often are conducted at large, academic medical centers in major metropolitan … (read full article)

Primary category: Movement Disorders

Answers, Acceptance and Advocacy: Growing Up with Tourette Syndrome

The symptoms started in pre-school: vocal tics including throat clearing to barking like a dog, anxiety, and difficulties with fine and gross motor skills and mental processing. Young Adam Fishbein quickly became confused and frustrated—for years, school would be “a nightmare”—and his parents became increasingly alarmed. What was happening to … (read full article)

Primary category: Amyotrophic Lateral Sclerosis

ALS and Precision Medicine: Learning from Patients Worldwide

The ALS Therapy Development Institute  (ALS TDI)  is a comprehensive drug discovery lab focused solely on amyotrophic lateral sclerosis (ALS). ALS is a progressive neurodegenerative disease that attacks the nerves responsible for voluntary movement. People with ALS can ultimately become completely paralyzed and the average life expectancy is usually between … (read full article)

Primary category: Amyotrophic Lateral Sclerosis

What is ALS?

May is ALS Awareness Month, and Real World Health Care wants to support the ALS patient community by bringing awareness to this disease. The following “primer” provides need-to-know information about Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease. ALS Defined ALS is one of a group of conditions … (read full article)

Primary category: Movement Disorders

Growing Up with Huntington’s Disease

Next month marks Huntington’s Disease (HD) Awareness Month and Real World Health Care is dedicating this column to an important part of the Huntington’s patient community: children, teens and young adults. “Whether youth have a parent with Huntington’s or if they themselves have the early-onset form of the disease called … (read full article)

Primary category: General

Special Report: How do We Get People to Think Beyond Their Own Personal Risk?

Does the best science always inform the best behavior change? “In times of distress, human nature drives us toward each other. After 9-11, people came together. Physical contact with the people we cared about brought comfort. Maybe that’s why the public health messages about social distancing are not always getting … (read full article)

Categories: General
Primary category: Movement Disorders

Navigating Cognitive Changes in Parkinson’s Disease

Editor’s Note: The following has been excerpted, with permission, from Navigating Cognitive Changes in Parkinson’s Disease, published by The Michael J. Fox Foundation for Parkinson’s Research (MJFF). It was written by MJFF Vice President of Medical Communications and movement disorder specialist Rachel Dolhun, MD, in collaboration with Parkinson’s experts, the … (read full article)